Partly Cloudy

Partly Cloudy

max temp: 21°C

min temp: 18°C

Search

The pigs have arrived. See the latest

Pigs Gone Wild

news here.

Stowmarket: Baby Evanee, the little fighter, defies the odds to overcome heart problems

13:00 21 August 2014

Evanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Mum Lisa and Evanee.

Evanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Mum Lisa and Evanee.

They named her Evanee which means young fighter – and the words could not be closer to the truth for this “miracle” seven-month-old.

Evanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Lisa and Matt Day with Evanee and her sister Kaira.Evanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Lisa and Matt Day with Evanee and her sister Kaira.

When Lisa and Matt Day went for their 20-week scan they did not expect to be told their baby had a heart defect.

At each of the following scans doctors told them that little Evanee’s condition was even worse than first feared.

It was eventually confirmed that she would need three open-heart surgeries in the first few days of her life.

She was diagnosed with Hypoplastic Left Heart Syndrome – meaning her left ventricle had become very small because of a blockage.

Evanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Evanee Day with her sister KairaEvanee Day was born in January with a rare heart defect. Since then she has overcome the odds and now seems to fighting fit. Evanee Day with her sister Kaira

The couple, from Masefield Road, Stowmarket, were told the risks of Evanee surviving had become smaller with every new complication.

Mrs Day, 27, said: “It was probably the worse few months of our lives, we did not know what to expect. We saw people at the same time going for their 20 week scans but we found out that our baby had a heart problem.

“The next few months were not easy at all because we knew she was going to have the three big surgeries in the first few days.

“We had to leave our daughter Kaira which was not easy because we had never left her before. We were lucky that we have a very supportive family and my mum looked after her.”

Matt and Kaira Day looking at Evanee's diary that the nurses did for her during her time in hospital.Matt and Kaira Day looking at Evanee's diary that the nurses did for her during her time in hospital.

Evanee was born on January 21 and immediately defied the odds. She needed no assistance to breathe and was better than originally thought.

“I was told she might be blue and that she might need help breathing, but when she was born she was screaming so we knew that her lungs and everything were working as they should be,” Mrs Day added.

But Evanee, who had been seen by specialists at the Evelina London Children’s Hospital, still had to undergo rare surgery. Experts placed bands around her pulmonary arteries and a stent to keep the duct open which would allow her heart to grow.

Mr Day, 34, who works as a yard foreman in Creeting St Mary, said: “The hospital’s staff are worth their weight in gold, it’s an amazing hospital, we could not praise them enough; because of how grateful we are we are going to be doing a walk next year from the Evelina to West Suffolk Hospital.”

The operation was undertaken nine days after Evanee was born with the family able to come home on February 9 when she was three weeks old.

But there was more trouble on the way. Shortly after coming home she was taken to hospital on two occasions because she was pale and drowsy. Both times it was discovered she had kidney reflux – a condition where a valve in the bladder fails to work.

Not long after both Evanee and her sister, Kaira, three, had bad cases of chicken pox.

Mrs Day said: “She has pretty much amazed everyone with what she has done.

“To a lot of people she’s just had surgery but when you know the extent of it all it’s different.

“She’s a miracle – how she has done, she’s living up to her name; we are really proud of her.”

Since leaving hospital for the first time Evanee had weekly visits to check her weight and progress.

But doctors were still unsure what to do and how to fix her heart fully. In May the family went back to London where it was decided she would undergo her second heart operation.

She was home six days later and has since had further check-ups at home and at hospital.

The family have been told Evanee should be able to lead a normal life with no restrictions to the things she can do. Surgeons have said though she may need further surgery over the next five years.

“We can do all the normal things families do now, before our life was on hold since September when we found out there was a problem,” Mrs Day said.

Have you got a story to tell about your child’s health? Email us at newsroom@archant.co.uk or call 01473 324802.

0 comments

Welcome , please leave your message below.

Optional - JPG files only
Optional - MP3 files only
Optional - 3GP, AVI, MOV, MPG or WMV files
Comments

Please log in to leave a comment and share your views with other Ipswich Star visitors.

We enable people to post comments with the aim of encouraging open debate.

Only people who register and sign up to our terms and conditions can post comments. These terms and conditions explain our house rules and legal guidelines.

Comments are not edited by Ipswich Star staff prior to publication but may be automatically filtered.

If you have a complaint about a comment please contact us by clicking on the Report This Comment button next to the comment.

Not a member yet?

Register to create your own unique Ipswich Star account for free.

Signing up is free, quick and easy and offers you the chance to add comments, personalise the site with local information picked just for you, and more.

Sign up now

BHS is closing down in Ipswich

BHS staff in Ipswich have still not been told when the store will close, the Star understands.

Felixstowe Carnival on Saturday afternoon, floats and entertainment
21/6/2016

Dazzling parade floats kicked off this year’s Felixstowe Carnival yesterday – and crowds are continuing to flock to the seaside event in today’s sunshine.

A drumming workshop at the Big Garden Activlives party on Saturday.

A community garden’s eighth annual fun day has been hailed a success with more people than ever taking part.

Sir Bobby Robson Bridge in Ipswich.

A 28-year-old man was assaulted and robbed of his bag, mobile phone and wallet on the Sir Bobby Robson Bridge at West End Road in Ipswich.

The Summer of Pubs trails 2016

More than 100 pubs in Suffolk and Essex are celebrated in a series of new trails to encourage residents and visitors alike to visit different parts of both counties.

The One Community Cup took place at Goals Soccer Centre, based near Suffolk New College. Photo: Inspire Suffolk.

A football tournament has been praised for bringing together people from different cultures and backgrounds in a celebration of sport.

A tractor broke down just after the Orwell Bridge.

A tractor has broken down on the A14 in Nacton just after the Orwell Bridge.

SaxFest music festival - range of bands, including The Thinking Men, Kid Mojo and The Filters, Hot Tramp, Handle with Care, Strike the Sun, Misprinted Lines.

Nearly 2,000 people flocked to the third annual SaxFest this weekend – listening to a host of local bands in the sunshine.

Dementia friendly pub, the Hadleigh Ram

A Hadleigh pub has been rewarded for its efforts to become accessible to all by being named the first dementia friendly restaurant in the town.

George Blagden in Versailles as  Louis XIV  (C) Canal +

He is television’s latest heart-throb, playing a starring role in the BBC’s steamy drama series Versailles.

Most read

Most commented

HOT JOBS

Show Job Lists

Topic pages

Streetlife

Newsletter Sign Up

Great British Life

Great British Life
MyDate24 MyPhotos24