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Tributes to brave Daisy Brooks, 7, from Bures, who died this week

17:58 20 November 2014

Daisy Brooks

Daisy Brooks

Archant

The father of a young Suffolk girl who became the first child in the world to receive pioneering treatment for an inoperable brain tumour has paid tribute to his “brave and caring” daughter who died on Monday – a day after her seventh birthday.

In May, Daisy Brooks, from Bures near Sudbury, was diagnosed with diffuse intrinsic pontine glioma, or DIPG – a disease which most children succumb to within 18 months of diagnosis.

Although there was no cure, the family was given a hope when Daisy was offered experimental brain surgery at Bristol Children’s Hospital.

The new technique, performed by neurosurgeon Professor Steven Gill, involved a software-guided robot installing a series of catheters attached to a titanium device to deliver chemotherapy direct to the tumour.

Daisy underwent three rounds of the treatment. Her dad Louis Brooks said: “October the 8th was the last round and since then, signs showed that parts of the tumour were dying off but it was too aggressive and Daisy had deteriorated and was too weak too have any more chemotherapy.

“She was such a brave, caring girl who never complained about anything – she was still smiling on Sunday, which was her birthday.”

Daisy loved attending Bures Primary School, and arts and crafts were her greatest passion. She went to Sudbury Gymnastics Club, the Elizabeth School of Dance in Colne Engaine and enjoyed spending time at Sudbury Cricket Club with her dad.

Since Daisy was treated at Bristol, the Brooks family, their friends and associates have raised almost £90,000 to help Professor Gill find new drugs for the treatment of brainstem tumours in children, using direct infusion into the brain.

Mr Brooks added: “We are really proud of the fact that Daisy was the first person to have the treatment. Two other people have since been operated on using what they have learned from Daisy.

“She has been a real catalyst for the medical team at Bristol and we intend to continue the fundraising for Professor Gill’s work in Daisy’s name.

“People have been wonderfully supportive so far and we would like to thank them all for their kindness.”

Anyone who would like to contribute can do so on her JustGiving page

3 comments

  • my heart goes out to the Brooke's family as a fellow Brain Tumour parent. Our daughter was also diagnosed this year - she has grade 3 anaplastic ependymoma - it is horrific in East Anglia alone I know of 4 parents who have lost their children to brain turmour this year and another 2 outside of East Anglia - I know many many children who are fighting literally for their lives - it is a wicked disease that not only takes their lives but whilst they are with us they suffer huge amounts of horrific side effects both physaically and manetally from the surgery and treatments they receive - more needs to be done to not only find a cure but find treatments that don't cause these issues - brain tumour is brain cancer but the money raised by cancer research almost nothing goes to researching brain cancer! These kids and their families need help and support too and to that end our eldest son is running the london Marathon in 2015 for Clic Sargent to support children with cancer - we all need to start shouting to get these kids what they deserve research and treatment - you can read our story here if you wish www.youre-in-my-spot.me.uk

    Report this comment

    Mandi Dixon

    Friday, November 21, 2014

  • I know what it's like losing a child, made worst by well meaning people saying how sorry they are ... just a thought " if the innocent don't pass where would the angels come from ...

    Report this comment

    KVH2014

    Thursday, November 20, 2014

  • very sad... really hits home. RIP little one. My thoughts go out to the family.

    Report this comment

    Rory Breaker

    Thursday, November 20, 2014

The views expressed in the above comments do not necessarily reflect the views of this site

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