Tributes to brave Daisy Brooks, 7, from Bures, who died this week
17:58 20 November 2014
The father of a young Suffolk girl who became the first child in the world to receive pioneering treatment for an inoperable brain tumour has paid tribute to his “brave and caring” daughter who died on Monday – a day after her seventh birthday.
In May, Daisy Brooks, from Bures near Sudbury, was diagnosed with diffuse intrinsic pontine glioma, or DIPG – a disease which most children succumb to within 18 months of diagnosis.
Although there was no cure, the family was given a hope when Daisy was offered experimental brain surgery at Bristol Children’s Hospital.
The new technique, performed by neurosurgeon Professor Steven Gill, involved a software-guided robot installing a series of catheters attached to a titanium device to deliver chemotherapy direct to the tumour.
Daisy underwent three rounds of the treatment. Her dad Louis Brooks said: “October the 8th was the last round and since then, signs showed that parts of the tumour were dying off but it was too aggressive and Daisy had deteriorated and was too weak too have any more chemotherapy.
“She was such a brave, caring girl who never complained about anything – she was still smiling on Sunday, which was her birthday.”
Daisy loved attending Bures Primary School, and arts and crafts were her greatest passion. She went to Sudbury Gymnastics Club, the Elizabeth School of Dance in Colne Engaine and enjoyed spending time at Sudbury Cricket Club with her dad.
Since Daisy was treated at Bristol, the Brooks family, their friends and associates have raised almost £90,000 to help Professor Gill find new drugs for the treatment of brainstem tumours in children, using direct infusion into the brain.
Mr Brooks added: “We are really proud of the fact that Daisy was the first person to have the treatment. Two other people have since been operated on using what they have learned from Daisy.
“She has been a real catalyst for the medical team at Bristol and we intend to continue the fundraising for Professor Gill’s work in Daisy’s name.
“People have been wonderfully supportive so far and we would like to thank them all for their kindness.”
Anyone who would like to contribute can do so on her JustGiving page