‘Let’s get rid of this’ - how brave Emily, 10, faced brain tumour battle
PUBLISHED: 16:00 24 May 2020
Sarah Lucy Brown
At the start if this year Emily Nicholls from Ipswich took on the biggest fight of her life – a cancerous brain tumour.
Initially it was thought the seizures Emily, 10, was experiencing in late 2019 were caused by epilepsy but an MRI scan on New Year’s Eve as part of routine tests revealed she actually had an aggressive form of brain cancer – grade three Ependymoma.
Dad Matt, 43, who works for a software company, said his daughter’s diagnosis was every parent’s worst nightmare realised, but her positivity helped him cope.
Matt said: “She’s awesome. I wish I could do the same if it was me.
“The first 24/48 hours she was a bit shocked, as were we all, and then she was ‘bugger that, I’m just going to get on with it. Let’s do it, let’s get rid of it’.”
Now he and Emily’s mum Vicki, 40, hope by sharing their experiences, it may help others going through something similar.
Emily, a pupil at Bramford Primary School in Ipswich, remained at Ipswich Hospital for the first week of January and she was then admitted to Addenbrooke’s Hospital in Cambridge on January 24 where she underwent surgery to remove the tumour, which was all taken out.
Then, not long before the UK was put into lockdown due to coronavirus, Emily and her family began preparing for her to have proton beam therapy, which fortunately was possible at the Christie Hospital in Manchester rather than having to go abroad.
At the start of the seven weeks of treatment, Matt and Vicki would take it in turns to stay with her up in Manchester, but when lockdown came Matt remained there with her while Vicki was with their son, 13, at home in Ipswich.
Matt, who shared a room with his daughter in Manchester for six weeks, said she had been “incredibly positive”.
He said: “She has days when she says ‘why me? Why do we have to go through all this?’ and she’s a bit down about it.
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“But it’s hard to be down in the dumps when you have been with her and she’s so positive about things.”
Emily, who loves reading, climbing and sloths, is really missing her friends, having not been in school since December because of the cancer.
The youngster was even forced to celebrate her 10th birthday on May 14 in lockdown, but she still had a “lovely time” according to Vicki, who said they indulged in vegan iced doughnuts from Doodle Donuts, games, cake, a walk and Emily’s favourite takeaway for dinner.
Matt, who was able to continue working remotely during Emily’s treatment, added: “We have had several packages of cards and letters from the school, which has been really cool, and she’s in touch with a handful of her mates and often has calls with them.”
The treatment, which finished on April 28, has made Emily feel nauseous and tired, so she has a wheelchair in case she needs it, but Matt said they are trying to make sure she gets out for exercise.
She managed to avoid having chemotherapy, but the brain surgery and proton beam therapy have left her with a bald patch, which she covers with bandanas from the charity Bandanas for the Brave.
Matt said Emily had a recent check-up with the oncology consultant at Addenbrooke’s and “everything from their perspective is looking good at the moment”.
Her first MRI scan post-treatment is in June and they are hoping it comes back clear.
Matt said: “I feel she’s been lucky. Everything has gone well. They have managed to remove the entire tumour. Treatment has gone well.”
He added: “Since we got that initial appointment at Ipswich, it was incredibly quick. It was only a month from picking up the tumour to having the surgery.”
On Instagram Emily and her family have been using ‘Emily’s brain tumour journey’ to keep a record of her illness and treatment and be able to share it with friends and family and people they are in touch with from up in Manchester. Anyone wanting to get in contact can do so via Instagram.
There is also a JustGiving page to support the family with costs, such as travel to and from Manchester, that has raised more than £3,000.
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