Fun day for Oakley raises charity money and awareness of rare genetic condition
PUBLISHED: 07:38 11 August 2019 | UPDATED: 07:48 11 August 2019
A fun day to help raise awareness of a rare genetic disorder in honour of an Ipswich three-year-old with the condition has been hailed as an “amazing” success.
Oakley Turnbull was diagnosed with the life-limiting Duchenne Muscular Dystrophy (DMD) last year, and the rare condition causes muscles to gradually degenerate and weaken.
The diagnosis means Oakley could face heart and lung problems later in life and be wheelchair-bound by age 12.
Parents Sam Turnbull, 34, and Scott Turnbull, 35, have since been fighting to raise awareness of their youngest son's condition, with the help of Oakley's nursery school teacher Lisa Mattin-Moss.
A fun day was held yesterday at Oakley's nursery - Button and Bows in Aster Road - to raise awareness and money for Action Duchenne and Duchenne UK, which have supported the family.
The day featured a car boot sale, raffle, a cake stall, and Oakley's aunt, Tracy Flack, had her head shaved to raise funds.
There was also a sponsored mud fun run and obstacle course.
Mum Sam said: "Our family would just like to say a massive thank you to each and every one of you that came to support the charity and contributed towards that amazing £850.89 that was raised.
"We are feeling ever so grateful that you all took time out of your busy lives to help raise awareness of Duchenne Muscular Dystrophy in honour of our son Oakley."
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