Brave Skyla Creamer ‘is missed with every one of our heartbeats’ say heartbroken family after her death aged nine

Skyla had a rare condition which left her blind and unable to eat. Isobelle, pictured here aged seve

Skyla had a rare condition which left her blind and unable to eat. Isobelle, pictured here aged seven, was preparing to take on a five-mile fundraising walk to raise cash for an epilepsy charity. Picture: PHIL MORLEY - Credit: Archant

A brave little girl who defied doctors by reaching a milestone medics never thought she would has died aged nine.

Skyla Creamer, who arrived eight weeks early and battled against numerous medical condition, has die

Skyla Creamer, who arrived eight weeks early and battled against numerous medical condition, has died aged nine. Picture: SUPPLIED BY SKYLA'S FAMILY - Credit: Archant

Skyla Creamer, from Ipswich, battled through several complex medical conditions and had up to 400 fits a day after she was born eight weeks early.

She was also blind, unable to eat, sit, stand or walk and could not communicate.

Despite these challenges, Skyla – who loved music, adored Peppa Pig and enjoyed being outside – she was a happy, funny little girl.

The youngster died at Ipswich Hospital on February 26 from a serious lung infection.

Skyla Creamer, who suffered brain damage after being born at 32 weeks, pictured in 2009 with mum Avr

Skyla Creamer, who suffered brain damage after being born at 32 weeks, pictured in 2009 with mum Avril, dad David and sister Isobelle. Picture: LUCY TAYLOR - Credit: Archant


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Now her heartbroken family, which includes dad David, mum Avril and devoted older sister Isobelle, are paying tribute to her.

In a statement, Skyla’s family said: “Skyla is missed with every one of our heartbeats, but she leaves us much better people than before she came along.

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“She taught us to be grateful for every single day we wake up, to take pleasure from the small things and to never give up hope even when things seem dire.

“Maybe most importantly though we learnt that even if you are severely disabled and in a wheelchair, you can still have incredible adventures and experience a lot of fun times.”

Skyla as a baby. Picture: LUCY TAYLOR

Skyla as a baby. Picture: LUCY TAYLOR

On Skyla’s first birthday, Mrs Creamer and her husband were told their youngest had a rare form of epilepsy, severe cerebral palsy alongside a series of other conditions.

On bad days, ambulances were at the house at all times of night – but their courageous daughter, who they say had an infectious will to live – always fought back.

Last year, Skyla and her sister Isobelle were awarded Town 102’s Child of Courage award.

Together, the inseparable pair met celebrities, held the Premier League trophy, visited all four Cardinal Points of the UK and visited Peppa Pig World as part of Skyla’s bucket list. Her family added: “Skyla left us to play with the angels on Monday 26th February 2018, aged forever nine.

Little Skyla had uncontrollable epilepsy and suffered several hundreds of fits a day. Picture: LUCY

Little Skyla had uncontrollable epilepsy and suffered several hundreds of fits a day. Picture: LUCY TAYLOR

“She leaves behind many people who loved and cared for her, several people who have been touched by her bravery over the years.”

Little Skyla quickly became a regular at Ipswich Hospital.

The family are asking for donations in her memory to be made to the hospital’s Children’s Appeal.

To donate, visit this link.

Skyla with older sibling Isobelle, who won Town 102's Child of Courage award in 2017 for her devotio

Skyla with older sibling Isobelle, who won Town 102's Child of Courage award in 2017 for her devotion to her little sister. Picture: LUCY TAYLOR

If the above does not work, copy and paste the following into the address bar www.heavenaddress.com/Skyla-Rae-Creamer/1812444/donations/5112

From left to right: David, Skyla, Isobelle and Avril Creamer. Picture: SUPPLIED BY SKYLA'S FAMILY

From left to right: David, Skyla, Isobelle and Avril Creamer. Picture: SUPPLIED BY SKYLA'S FAMILY - Credit: Archant

A tiny Skyla pictured here with mum Avril and dad David. Picture: SUPPLIED BY SKYLA'S FAMILY

A tiny Skyla pictured here with mum Avril and dad David. Picture: SUPPLIED BY SKYLA'S FAMILY - Credit: Archant

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