People are urged to support a fundraising appeal for the family of a six-month-old Ipswich baby battling a terminal condition whose “beautiful smile lights up the room”.
Alyssa Mullin was diagnosed with spinal muscular atrophy (SMA) type 1 just 10 weeks after being born. The condition causes weakness and difficulty in moving, with most babies diagnosed with type 1 dying within a few years.
Close family friends Kristina Long, 29, and Kirsha Dyer, 29, both of Ipswich, are taking part in a charity skydive in Beccles on September 2.
They have also launched an online JustGiving fundraising page, named Alyssa’s Angels, for the family.
They wrote on the page: “Our best friend’s daughter Alyssa, who is now six months old, was diagnosed with spinal muscular atrophy type 1 at just 10 weeks old. One of things we want to do is raise awareness of this life-limiting terminal illness.
“Spinal muscular atrophy (SMA) affects the muscles, eventually resulting in the loss of any physical strength. It affects the nerve cells situated within the spinal cord, which affects the ability to walk, eat and breathe. There are four types of SMA with type 1 being the worst form.
“Alyssa is still here with us today currently battling this illness and continues to show her determination and strength.
“Since being diagnosed Alyssa unfortunately has had to spend a considerable amount of time in hospital in the Bergholt Ward.
“Staff on this ward do an amazing job and have cared for Alyssa to the highest standards. Consultants, nurses, healthcare assistants – the lot.
“Not only have they cared for Alyssa, they have taken care of the people that surround Alyssa – her parents, her family and friends.
“We all love Alyssa so, so much and she continues to fight day in, day out, and even with a beautiful smile that literally just lights up the room.
“We want to be able to give something back to the Bergholt Ward for their professionalism, time and care that they continue to provide for not only Alyssa but for others too.
“Any donations would be greatly appreciated; and nothing is too small.”
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